Tuesday, November 26, 2019

PAID!

Guess what?!! The money for HSCT has officially been fully paid, thanks to all of you! And, I thought it was exciting yesterday, when I  scheduled my four MRIs needed before the treatment! 67 days until arrival! Yahoo!

My thyroid is now under control & feels so much better. Now, to get stronger! Watch out, Mexico! February 2nd, here I come!

Saturday, November 9, 2019

Tickets!

This wouldn't work before, but GUESS WHAT?! We bought our plane tickets for HSCT! Yahooey!

What Does My Neurologist Think of Me Getting HSCT?

Neurologists very rarely support a patient going out of country for HSCT. I know this. I mentally prepared myself for this fact. I even incorporated the cost of me having to pay for four different MRIs done out-of-pocket, into the HSCT goal. Boy, do I feel silly! I should know by now, that God is obviously making all of the different pieces for this treatment, just fall into place. 🙌

At the end of my routine appointment with my neurologist this week, I told her that I decided to definitely do HSCT. And I quote,  "So, you waited until the end of our appointment to drop this bomb." Gulp. To be fair, we had been consumed with talking about other health stuff.

After listening to me being unwilling to do a 4th round of Lemtrada (I don't think she liked that idea either), not wanting to fall into another MS free fall (which would happen without further treatment), identifying that there are no other options for me, & I will definitely get worse without it, her entire demeanor switched!

She wrote the MRI prescriptions without hesitation, even saying that she could argue with insurance for one of them they may not like. She wanted me to go in for a pre-HSCT evaluation, but then decided I can just email instead. She also wants to follow & support me after.

Seriously, I am SO very thankful! My neurologist really fights for whatever she believes in, which is fantastic... if you're on
the same side. I already knew she wasn't a fan of out-of-the country treatment, so wasn't entirely optimistic. But, I was prepared to stand my ground, because I KNOW without a doubt, that this is the next right step God wants me to take. I know this is definitely yet another door God just blew open... UBER EXCITING! 🙌