Tuesday, November 26, 2019

PAID!

Guess what?!! The money for HSCT has officially been fully paid, thanks to all of you! And, I thought it was exciting yesterday, when I  scheduled my four MRIs needed before the treatment! 67 days until arrival! Yahoo!

My thyroid is now under control & feels so much better. Now, to get stronger! Watch out, Mexico! February 2nd, here I come!

Saturday, November 9, 2019

Tickets!

This wouldn't work before, but GUESS WHAT?! We bought our plane tickets for HSCT! Yahooey!

What Does My Neurologist Think of Me Getting HSCT?

Neurologists very rarely support a patient going out of country for HSCT. I know this. I mentally prepared myself for this fact. I even incorporated the cost of me having to pay for four different MRIs done out-of-pocket, into the HSCT goal. Boy, do I feel silly! I should know by now, that God is obviously making all of the different pieces for this treatment, just fall into place. 🙌

At the end of my routine appointment with my neurologist this week, I told her that I decided to definitely do HSCT. And I quote,  "So, you waited until the end of our appointment to drop this bomb." Gulp. To be fair, we had been consumed with talking about other health stuff.

After listening to me being unwilling to do a 4th round of Lemtrada (I don't think she liked that idea either), not wanting to fall into another MS free fall (which would happen without further treatment), identifying that there are no other options for me, & I will definitely get worse without it, her entire demeanor switched!

She wrote the MRI prescriptions without hesitation, even saying that she could argue with insurance for one of them they may not like. She wanted me to go in for a pre-HSCT evaluation, but then decided I can just email instead. She also wants to follow & support me after.

Seriously, I am SO very thankful! My neurologist really fights for whatever she believes in, which is fantastic... if you're on
the same side. I already knew she wasn't a fan of out-of-the country treatment, so wasn't entirely optimistic. But, I was prepared to stand my ground, because I KNOW without a doubt, that this is the next right step God wants me to take. I know this is definitely yet another door God just blew open... UBER EXCITING! 🙌

Friday, October 18, 2019

Butterfly


Did you know that your thyroid is shaped like a butterfly? I figured a butterfly was more interesting to look at, than a thyroid. 😁

This thyroid thing had been kicking my tushky! It's why I've been so incognito lately. I'm sorry! So, I've learned that my thyroid is definitely way hyper... need to talk with the doc again to get a final diagnosis, but whatever. It is, what it is. 😀

I ended up hitting up the ER earlier this week, because my heart rate was so fast. However, they couldn't give me any medicine for it, because I also have low blood pressure. I've just always had that going on. Anyhow, I have a fantastic endocrinologist & am confident he will quickly get things figured out.

I told him that my goal is to have this all of this straightened out before HSCT in February! We've got plans, people! Planes to catch & wacky immune systems to smash! 😁

One more thing, please pray for Marian & James! I met them in the waiting room at the hospital yesterday (before my first thyroid test). Whether or not I was happily driving in circles around their section is irrelevant. (You had to be there for context.) 😂

Anyhow, Marian has back problems & is always on medication for the pain. And James... ohmigoodness, God crossed our path with James FIVE times over the last two days! THAT is definitely for a reason! Anyhow, he is homeless... & has problems with his knee. They would both really appreciate your prayer! :D

Tuesday, October 8, 2019

ThAnK-yOOOu!! 🎉 And, a fundraiser?


Last week, we were at 58% of our goal. It was unbelievable, especially since we had made a jump from 34% the week before. Well folks, you've done it again... YOU DID IT!! 42% was reached in one week & WE'VE REACHED OUR GOAL!!! Can you even believe it?! YOU raised $65,000 in just over a month!

And, what makes this even more amazing, is that the age no big companies are involved in any of this! It is literally YOU, out of the generosity of your own hearts and allowing yourselves to be led by the Lord!

I am very fortunate to have amazing friends & family who have offered to contribute even more, if needed. My response has been.... & remains... Please give or not give, based on how the Lord is leading you. I definitely don't want to interfere with that at all!

So, this brings us back around to the title of this... A fundraiser?! If I were you, I would be wondering why in the world a fundraiser is  even being thought about at this point. I feel that it's only fair that only right that I explain.

Probably much like you, we never thought the funds would come in so quickly. We started planning for this from the beginning.

- So, why didn't we just cancel it?

We thought about it. However, there are still people who are wanting to also help & contribute through this fundraiser. Additionally, the will be other medical expenses, that were not included in the goal. Anything that would also be able to help with that, would be completely AmAAA-zing! 😀

More information about the fundraiser will be coming soon. It will be kicking off with a 5K Fun Run/Walk at 9a.m. on Saturday, October 26th at Potomac Heights Baptist Church (37 Glymount Rd., Indian Head,  MD). There is no set cost. Donations happily accepted. 🏃‍♂️